The word “deaf-blindness” may seem as if a person cannot hear or see at all. The term actually describes a person who has some degree of loss in both vision and hearing. The amount of loss in either vision or hearing will vary from person to person.
Our nation’s special education law, the IDEA, defines “deaf-blindness” as:
…concomitant [simultaneous] hearing and visual impairments, the combination of which causes such severe communication and other developmental and educational needs that they cannot be accommodated in special education programs solely for children with deafness or children with blindness. [§300.8(c)(2)]
The National Consortium on Deaf-Blindness observes that the “key feature of deaf-blindness is that the combination of losses limits access to auditory and visual information.” This can severely limit an individual’s natural opportunities to learn and communicate with others.
Finding Help for Children with Deaf-Blindness
Children birth to age 3 | Very young children (birth up to age 3) who are deaf-blind are typically eligible for early intervention services under the Infants and Toddlers with Disabilities program of IDEA (also called Part C). These services are extremely important to children with deaf-blindness and their families, for the services are designed to address the child’s developmental and learning needs. Parents are involved in deciding what services their child and family need to address the challenges of deaf-blindness. Services are either provided free of charge to families or on a sliding cost scale based on the family’s income.
To find the early intervention program in your area, ask your pediatrician or get in touch with the pediatric unit of a nearby hospital. Say that you’re looking for a referral to early intervention or Child Find for a baby or toddler. You can also contact the ECI division of the Texas Department of Assistive and Rehabilitative Services (DARS) at 1.800.628.5115.
School-age children, including preschoolers | When children with deaf-blindness reach the age of 3, they transition into special education services under Part B of IDEA. Special education services are provided free through the public school system. Even if a child with deaf-blindness is not in school yet (for example, a four-year-old), the school system is still responsible for making sure that special education and related services are available to the child.
Because deaf-blindness causes severe communication and other developmental and educational needs, it’s very important for children with deaf-blindness to receive special education and related services to address their individual needs. You can find out more about these services and how to access them by contacting the local elementary school in your area.
Resources for Deaf-Blindness
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FAQs about deaf-blindness.
What is deaf blindness?
Information about deaf-blindness. Personal insights and information from an individual with deaf-blindness.
How do deaf-blind people communicate?
The Deafblind Manual Alphabet.
Find what’s out there on your topic. Search the world’s most comprehensive collection of books, articles, proceedings, videos and other materials about deaf-blindness.
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Developing an Effective IEP for Children with Deaf-Blindness (PDF, 770KB)
En Español | Desarrollo de un IEP efectivo para niños con ceguera-sordera (PDF, 639KB)
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State deaf-blind projects. Every state has one. Find yours at the National Center on Deaf-Blindness.
Visit the American Association of the Deaf-Blind.
AADB provides a listing of state and local organizations for deaf-blind people and also a listing of service and rehabilitation agencies around the country.
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National Consortium on Deaf-Blindness (NCDB)
Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)
American Association of the Deaf-Blind (AADB)
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For new parents: You and your baby.
Early interactions with children who are deaf-blind.
Also available in Spanish and in Indonesian.
Communication at home and in the community. Helpful strategies and suggestions from parents and families with a child who is deaf-blind.
Communication fact sheets for parents.
Talking the language of the hands to the hands.
This publication examines the importance of hands for the person who is deafblind, reviews hand development, and identifies specific teaching skills that facilitate hand development and expressiveness in persons who are deafblind. Also available in Danish, Swedish, German, and Spanish, at the link.
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Considerations when teaching students who are deaf-blind (NETAC Teacher Tipsheet).
Deaf-blindness: Educational service guidelines.
This best practice guide is designed to help states, districts, schools and practitioners in supporting students who are deafblind and their families. Available in English and Spanish from the Perkins School for the Blind.
English | http://www.perkins.org/resources/educational-publications/deafblindness-educational-service-guidelines/db-guidelines-english.html
Spanish | http://www.perkins.org/resources/educational-publications/deafblindness-educational-service-guidelines/db-guidelines-spanish.pdf
IEP development | Lots of resources in English and Spanish!
Enter at the link below, and select from a rich list of articles in English and Spanish related to the IEP.
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Transition toolkit: Enhancing self-determination for young adults who are deaf-blind.
More on transition planning for students with deaf-blindness.
Lots to pick from here, on the Transition landing page.
And more on self-determination.
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Visit the National Center on Deaf-Blindness, where you’ll find a wealth of information in Spanish on deaf-blindness.
English/Spanish Specialized Deaf-Blind Glossary/Espanol Glosario Especializado En Sordoceguera.
[/rescue_toggle][rescue_spacing size=”20px”][rescue_box color=”green” text_align=”left” width=”100%” float=”none”]Check out our Children & Young Adults (3 to 26 years) section for more information on Special Education and Related Services, Parental Rights under IDEA, Evaluations, IEPs, Placement, Discipline and more.[/rescue_box]